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Ryan White
CARE Act
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Introduction
The federal Ryan White Comprehensive AIDS Resources Emergency (CARE) Act was originally
enacted on August 18, 1990.
The CARE Act is named for Ryan White, an 18 year old Indiana teenager with hemophilia who
died of AIDS in 1990. The primary goal of the CARE Act, which is made up of five program
areas know as "titles", is to improve the quality and availability of care for
individuals and families affected by HIV disease.
Title I
Provides emergency funding to localities disproportionately affected by the HIV/AIDS
epidemic. Eligible localities must report to CDC more than 2,000 cumulative cases of AIDS
for the most recent five years. The reauthorized CARE Act has capped the number of cities
eligible for Title I funding. Wisconsin does not contain a Title I Eligible Metropolitan
Area (EMA), however two western counties, Pierce and St. Croix are included in the
Minneapolis EMA.
Title II
Provides formula grants to all 50 states, the District of Columbia, Guam, Puerto Rico, and
the Virgin Islands to provide home and community-based care, assistance with the
continuation of health insurance coverage, and treatment and drugs that prolong life
and/or prevent hospitalization. The AIDS Drug Assistance Program (ADAP) earmarked portion
of the Title II award must be spent on HIV related medications.
Title III
Provides funding to community-based health care providers who provide early intervention
and primary care services to affected individuals with HIV and AIDS. Services include
early health care intervention, primary care, education, counseling, testing, and
treatment. The UW Health HIV Care Program, Milwaukee Health Services,
AIDS Resource Center of Wisconsin, and Sixteenth Street Community
Health Center are
Title III grantees currently funded in Wisconsin (see contact
information below).
Title IV
Provides support for maternal and pediatric HIV services and coordination with clinical
research affecting women children, adolescents, and families. The Title IV grantee is the
Wisconsin HIV Primary Care Support Network, located at Childrens Hospital of
Wisconsin (Milwaukee) and administered by the Medical College of Wisconsin.
Title V
Provides funding for special programs, which advance the knowledge and skills in the
delivery of HIV health and support services including education and training for health
care providers and reimbursement for schools of dentistry. The Midwest AIDS Training and
Education Center (MATEC) located at the University of Wisconsin - Madison and the AIDS
Resource Center of Wisconsin (ARCW) in Milwaukee is the Title V grantee.
Under Title II, states may elect to use
funds in four categories:
- to establish and operate HIV CARE consortia within areas
most affected by HIV disease, designed to provide a comprehensive continuum of care to
individual and families;
- to provide home-and community-based care services for
individuals with HIV disease;
- to provide assistance to assure the continuity of health
insurance coverage for individuals with HIV disease; and
- to provide treatment (drug therapies) that have been
determined to prolong life or prevent serious deterioration of health for individuals with
HIV disease.
The Wisconsin Division of Public Health
(DPH) uses Ryan White Title II funds to support consortium activities, drug reimbursement, insurance
continuation, grant administration, and planning and evaluation. The Division has three
goals in the allocation of Ryan White Title II funds.
These include:
- ensuring that combination antiretroviral therapy is
available to HIV-infected persons eligible for the Wisconsin AIDS Drug Assistance Program
(ADAP) without capping services or resorting to a waiting list.
- providing funds to local agencies
and communities to
ensure that community-based care, treatment, and supportive services are available
statewide; and
- providing program and administrative support to the AIDS/HIV
Program to adequately meet its obligations as the Title II grantee, contract
administrator, and provider of drug and insurance service.
Wisconsin AIDS/HIV Drug
Assistance Program
Ryan White ADAP and formula funds purchase Food and Drug Administration (FDA) approved,
HIV-related treatment medications. Title II funds are used by the AIDS/HIV program to
support staff within the AIDS/HIV Program responsible for the direct provision of drug
reimbursement services statewide. This includes one professional staff responsible for the
administration and oversight of the ADAP and one program assistant responsible for claims
processing and program support.
AIDS/HIV Health Insurance Premium
Subsidy Program
Ryan White formula funds are used to support program operations associated with the direct
provision of insurance continuation services statewide.
Administration
Title II funds support the overall administration and coordination of the Title II grant
this includes the Ryan White CARE Grant Coordinator position and program support staff to
assist with data collection and contract monitoring.
Planning & Evaluation
Title II funds support planning and evaluation activities related to care, treatment and
supportive service programs. This includes activities to support the Statewide Coordinated
Statement of Need (SCSN). As part of the Division of Public Healths 1997 Ryan White
Grant, the AIDS/HIV Program was required by the federal Health Resources and Service
Administration to convene a meeting to develop a SCSN. The goal of the SCSN process is to
collaboratively develop a statement that identifies the HIV care, treatment and supportive
service issues of people living with HIV, and to encourage collaboration and information
sharing among the other Ryan White CARE Act Titles in the state. The process is intended
to enhance and support the planning and needs assessment activities currently being
undertaken by local HIV CARE consortia and other HIV service providers.
Wisconsin
Comprehensive Plan for Ryan White Services 2006-2009
(PDF, 1.2 MB)
Wisconsin
HIV/STD/Hepatitis C Information and Referral Center
A portion of the Ryan White Grant is used to support the Wisconsin
HIV/STD/Hepatitis C Information and Referral Center to promote access and referral to HIV care, treatment and supportive services. The
Information and Referral Center is operated by the AIDS Resource Center of Wisconsin in Milwaukee.
Questions regarding Ryan White Title II
should be directed to Michael McFadden at 608-266-0682.
Questions regarding the other Ryan White Programs should be
directed to the following:
Title III
Milwaukee Health Services
2555 N Martin Luther King Drive
Milwaukee, WI 53212
414-267-3700
University of Wisconsin Hospitals & Clinics
HIV Clinic
600 Highland Ave.
Madison, WI 53705
608-262-9414
AIDS Resource Center of Wisconsin
820 N. Plankinton Ave
Milwaukee, WI 53203
414-273-1991
Sixteenth Street Community Health Center
1032 S. 16th Street
Milwaukee, WI 53204
414-672-1353
Title IV
Wisconsin HIV Primary Care Support Network
Department of Pediatrics
Medical College of Wisconsin
8701 Watertown Plank Road
Milwaukee, WI 53226
414/456-4199
AIDS Training and Education Centers
Midwest AIDS Training and Education Center (MATEC)
UW Dept. of Medicine
732 N. Midvale Blvd.
Madison, WI 53705
608-261-1152
MATEC web site: www.uic.edu/depts/matec
Last Revised: October 16, 2007 |